Mother reports lack of special diet for children with metabolic disease in hospital

Acoraida Perera reports difficulties obtaining a specialist diet for her 6-year-old children at Hospital Universitario Materno Infantil de Canarias. The family states that kitchen staff refuse to prepare meals adapted for the children's rare metabolic disease.

The children suffer from 3-hydroxy-3-methylglutaric aciduria. This condition requires a very restrictive diet.

During the last hospitalisation of the daughter, Sirenia, hospital staff stated they could not prepare a meal. They cited a lack of appropriate specialists. The mother had to ask the grandparents to provide food prepared at home.